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ELSI Research Program The Ethical, Legal and Social Implications (ELSI) Research Program ELSI Research Program Overview

The National Human Genome Research Institute's (NHGRI) Ethical, Legal and Social Implications (ELSI) Research Program was established in 1990 as an integral part of the Human Genome Project (HGP) to foster basic and applied research on the ethical, legal and social implications of genetic and genomic research for individuals, families and communities. The ELSI Research Program funds and manages studies, and supports workshops, research consortia and policy conferences related to these topics.

An article describing the ELSI Research Program in greater detail can be found here: The Ethical, Legal and Social Implications Program of the National Human Genome Research Institute: Reflections on an Ongoing Experiment

On February 10, 2011, Nature magazine published NHGRI's strategic plan for the future of human genome research, called Charting a course for genomic medicine from base pairs to bedside . This plan includes a section on Genomics and Society that outlines four areas that will need to be addressed as genomic science and medicine move forward. Based on these areas, the NHGRI has developed the following broad research priorities.

A more detailed discussion of each of these areas and a list of examples of possible research topics is available at ELSI Research Priorities and Possible Research Topics.

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The NHGRI, along with several other National Institutes of Health (NIH) institutes, has released revised general program announcements to solicit research projects that anticipate, analyze, and address the ethical, legal, and social implications of the discovery of new genetic technologies and the availability and use of genetic information resulting from human genetics and genomic research.

The NHGRI participates in the NIH-wide program announcments on human subjects research issues.

The ELSI program also participates in a number of related research grant opportunities, and time limited requests for applications.

The NHGRI ELSI Program accepts Conference Grant (R13) applications. For specific instructions for preparing a conference grant application, see:

The ELSI program participates in a number of training and career development funding opportunities.

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In the Fall of 2003, the NHGRI in collaboration with U.S. Department of Energy (DOE) and the National Institute of Child Health and Human Development (NICHD) launched a new initiative to create interdisciplinary Centers of Excellence in ELSI Research (CEER). The CEERs are designed to bring investigators from multiple disciplines together to work in innovative ways to address important new, or particularly persistent, ethical, legal, and social issues related to advances in genetics and genomics. In addition, the centers will support the growth of the next generation of researchers on the ethical, legal and social implications of genomic research. Special efforts will be made to recruit potential researchers from under-represented groups.

The National Human Genome Research Institute (NHGRI) is soliciting grant applications for the support of Centers of Excellence in ELSI Research (CEERs).

For more information about the CEER's program, see: Centers of Excellence in ELSI Research (CEER).

To view the PDFs on this page you will need Adobe Acrobat Reader.

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Joy Boyer, B.A. E-mail: boyerj@exhange.nih.gov

Dave Kaufman, Ph.D. E-mail: dave.kaufman@nih.gov

Nicole Lockhart, Ph.D. E-mail: lockhani@mail.nih.gov

Jean McEwen, J.D., Ph.D. E-mail: mcewenj@mail.nih.gov

Alexander Lee E-mail: alexander.lee@nih.gov

Annie Niehaus E-mail: annie.niehaus@nih.gov

Tasha Stewart E-mail: Tasha.stewart@nih.gov

Address The Ethical, Legal and Social Implications Research Program National Human Genome Research Institute National Institutes of Health 5635 Fishers Lane Suite 4076, MSC 9305 Bethesda, MD 20892-9305

Phone: (301) 402-4997 Fax: (301) 402-1950 E-mail: elsi@nhgri.nih.gov

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Last Updated: May 20, 2015

See original here:
The ELSI Research Program - Genome.gov

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