StemCell Therapy

SYRACUSE, N.Y.

It is degenerative eye disease that could eventually leave Stephanie Harmon blind.

Retinitis pigmentosa has forced the Salina mother to quit her job as she tries to raise two teenagers.

"To lose your vision. It is one of the scariest things. But I had 40 plus years of it, so I was blessed with that. I could have had nothing my whole life," Harmon said.

Four years ago, Harmon was diagnosed with retinitis pigmentosa, or RP, a disease where part of the retina slowly deteriorates.

It is fairly rare, affecting about one out of 4,000 people.

Imagine slowly losing your peripheral vision, your eyesight closing in . That is what Harmon said retinitis pigmentosa is like. She said right now for here, it is like each eye is looking through a toilet paper tube.

"It's just the little things, learning braille because it's way easier now while I still have some of my vision left than to do it while have nothing. It's little things like that but once you start accepting those things then you're really accepting that you have this," Harmon said.

Stephanie does not know if she will lose all her sight, but she is taking in all she can while she still has time.

There are things on top of my list that I want to do. I jumped out of plane last summer. Something that I'll be able to take with me forever and have that vision in my head," Harmon said.

View post:
Salina mother slowly losing eyesight wants to get the word out about rare disorder - CNYcentral.com

This entry was posted on February 23, 2017 at 11:53 am and is filed under Eye Sight & Vision. You can follow any responses to this entry through the RSS 2.0 feed. Both comments and pings are currently closed. |