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Policy & Ethics – Issues in Genetics

October 22nd, 2015 11:43 am

Feature HHS announces proposal to update rules governing research on study participant

Medical advances wouldn't be possible without individuals willing to volunteer to participate in research. Today's proposed changes to the Common Rule for protecting human research participants would update safeguards for participants and reduce unnecessary administrative burdens. For more information and details on providing comments on the proposed rule, go to: HHS News Release Read the Notice of Proposed Rulemaking [federalregister.gov]

The use of human subjects in the field of genomics raises a number of key policy considerations that are being addressed at NHGRI and elsewhere. Learn more about his important topic with a new fact sheet from the Policy and Program Analysis Branch. Read more

NIH has issued a position statement on the use of public or private cloud systems for storing and analyzing controlled-access genomic data under the NIH Genomic Data Sharing (GDS) Policy. Read the Position Statement

This fall, Cari Young, Sc.M., and Julie Nadel, Ph.D., will join the National Human Genome Research Institute as American Society of Human Genetics (ASHG)/National Human Genome Research Institute (NHGRI) education and public policy fellows. Ms. Young will spend time working with NHGRI's Policy and Program Analysis Branch, while Dr. Nadel will direct her talents to the Education and Community Involvement Branch. Both credit their high school biology classes with inspiring the direction of their careers. Read more

Last Updated: September 17, 2015

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