December 12, 2019 -Seventy-three percent of precision medicine adopters say these initiatives have neared or exceeded their expectations, with organizations using clinical analytics solutions and real-world data to meet their goals, according to a global survey from XIFIN and the Journal of Precision Medicine.
Approximately 59 percent of participants said that their EHR, EMR, or similar solutions did not meet or only partially met the needs of hands-on precision medicine users, indicating that success will require more advanced tools.
The fundamental design of EHRs makes them unsuitable for precision medicine programs because detailed patient data, such as biomarkers, are locked within a PDF, explained Nigel Russell, editor-in-chief of theJournal of Precision Medicine.
Physicians need real-time access to the patient data that will enable them to make the best patient care decisions, and today, investors and providers alike are looking for technologies that provide comprehensive clinical, diagnostic and financial data to ensure and build successful PMI programs.
The survey polled a total of 189 respondents, 62 percent of whom were from the US. The seniority of participants ranged from faculty or departments heads to board members and C-level executives.
Respondents said they are currently using provider-facing clinical analytics solutions, real-world data aggregation technology, business intelligence tools, and clinical data warehouse to advance their precision medicine initiatives, and that their frequency of use is higher than expected.
Just over ten percent of participants said they are currently using real-world data for disease insights or cohort studies, while just over nine percent are using real-world data to inform either clinical trial matching or peer-reviewed publications.
Eleven percent of respondents said that within two years, real-world data will be used for converge decision making. Just over nine percent said that real-world data will be used for drug efficacy and safety within two years, and the same percentage said real-world information will be used for clinical utility evidence development over the next two years.
Within three to five years, 12.4 percent of respondents believe that real-world data will be used for regulatory submissions, while just over ten percent think real-world data will inform claims adjudication or expansion of drug indications.
While precision medicine is becoming more mainstream, it is still a nascent discipline. Sharing the details of initiatives across the healthcare community will serve to accelerate adoption and determine future best practices so that we can truly harness precision medicine informatics for better outcomes, said Lle White, CEO, XIFIN.
For instance, the survey results demonstrate early adopters are already thinking about how high- quality real-world data will support and potentially accelerate clinical utility evidence development, coverage decision making, claims adjudication, expansion of drug indications, and regulatory submissions.
Powerful information like this is essential to reducing the cost of healthcare and improving patient outcomes, White added. It is imperative that organizations have a real-world data strategy both from a real-time access standpoint as well as from an actionable analytical insights perspective.
Precision medicine initiatives were also found to have a positive impact on certain quality metrics. Approximately 74 percent of respondents said precision medicine initiatives are increasing organizations ability to access real-world data. Almost 65 percent noted that precision medicine is improving organizations ability to query this data.
Additionally, 76.7 percent of healthcare professionals said precision medicine initiatives are having a positive impact on patient outcomes, while 53.3 percent said these initiatives are boosting patient satisfaction.
Over 76 percent said that precision medicine projects were helping care teams make better decisions, and 58.8 percent said precision medicine is increasing care teams ability to deliver personalized care. Nearly 56 percent said these initiatives are helping provide clinical decision support to care teams.
These findings indicate that with advanced technologies and comprehensive data, precision medicine could help health systems achieve their care goals. Going forward, if health systems adopt the right tools and develop effective solutions, precision medicine initiatives may become a larger part of the healthcare landscape, enabling organizations to deliver more informed, quality care.
Precision medicine and population health informatics offer the potential to infuse data at its most basic unit, the report concluded.
In addition, they put accompanying insights from aggregated de-identified data into precision medicine practitioners hands via the software that they use every day to support the decisions they need to make as part of the patient care journey.
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Over 70% of Orgs Say Precision Medicine Meets or Tops Expectations - HealthITAnalytics.com
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