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Nathan Pensini wants to generate awareness about a little-known condition his daughter has.

Support network: Rachelle and Jim Sanderson, Paul Martin and Alyssa, Nathan, Adrian and Cassie Pensini.

NATHAN Pensini knows better than most the pain which Ironman competitors face when they climb Matthew Flinders Drive.

But he also knows its nothing compared to the pain 17-year-old daughter Alyssa has to deal withevery day.

She was diagnosed with juvenile arthritis at the age of 11 and its whythis yearsIronman Australia will have added meaning for him.

Every time I go out I realise the painthat lasts for 10-12 hours or a few days after Ironmanfor every competitoris the type of pain Alyssa goes through every day, he said.

Thats the main driver for us.

Pensini has a great team of people racing alongside him this year in training partner Paul Martin along with Jim and Rachele Sanderson and brother and sister in law Adrian and Cassie.

One in 1000 Australians has juvenile arthritis who have attendedcamps in the last two years.

One is Camp Footloose, an Arthritis and Osteoporosis NSW initiative, which gives children with juvenile arthritis the chance to have fun and achieve personal success in sport and other outdooractivities at their own pace.

Juvenile arthritisis a serious, persistent medical conditionof childhood.

Its surprising how many people have this condition, he said.

Every time I go out I realise the pain that lasts for 10-12 hours or a few days after Ironman for every competitor is the type of pain Alyssa goes through every day. - Nathan Pensini

We dont know if its genetically linked or whether it is caused by eating a certain type of food.

Pensini and his brother first generated awareness about the condition when they competed in the 2015 Ironman.

He said it gatheredamazing support two years ago and now they want to build on that.

Kids are starting to be diagnosed with it from as early as 18 months old now, he said.

Weve got to get awareness out there soI want to make this as recognised as the Jane McGrath Foundation.

Tohelp the Pensinis raise awareness about the condition, for every $50 donated, people will go into the draw to win a mountain bike.

To donate, visit https://racingforjuvenilearthritis.gofundraise.com.au/ or visit the GoFundraise website.

The rest is here:
Ironman pain nothing compared to juvenile arthritis: Pensini - Camden Haven Courier

This entry was posted on April 26, 2017 at 10:41 am and is filed under Arthritis. You can follow any responses to this entry through the RSS 2.0 feed. Both comments and pings are currently closed. |